EuRREB

About EuRREB

EuRREB – European Registries for Rare Endocrine and Bone conditions supports patients, healthcare professionals, and researchers in the fight against rare endocrine and bone diseases. Our mission is to improve research and treatment for those affected by these rare diseases. Through our key registries, e-REC and Core, we offer a platform for gathering essential data and fostering collaborative research across Europe.

EuRREB works closely together with European Reference Networks (ERNs): Endo-ERN and ERN BOND and is supported by patients, researchers, clinicians, scientific societies and patient societies to build this database. Together, we are building a brighter future for those affected by these rare diseases. Want to join us in our fight by contributing to groundbreaking research and help to improve treatments for rare endocrine and bone conditions? Discover how you can be a part of this important work.

Our Project Management Team and database is based at the LUMC in Leiden, the Netherlands.

By sharing data and expertise you can directly contribute to improve the quality of life of patients with rare endocrine and bone/mineral conditions. Share, Care, Cure!

Share, Care, Cure!

 

EuRRECa

European Registries for Rare Endocrine Conditions

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Launched in February 2018, EuRRECa has been funded by the EU Health Programme and is supported by the European Society for Paediatric Endocrinology (ESPE) and the European Society of Endocrinology (ESE).

Since 2022 EuRRECa is part of Endo-ERN. Endo-ERN is the European Reference Network on rare endocrine conditions, which is a collaborative network of expert paediatric and adult endocrine centres in Europe providing healthcare to patients with rare endocrine conditions.

EuRR-Bone

European Registries for Rare Bone and Mineral Conditions

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In April 2020, EuRR-Bone is launched, which has been funded by the EU Health Programme and supported by the European Calcified Tissue Society (ECTS), and the International Osteoporosis Foundation (IOF).

Since 2023 EuRR-Bone is part of ERN BOND. ERN BOND is the European Reference Network on rare bone diseases, which is a collaborative network of expert paediatric and adult endocrine centres in Europe providing healthcare to patients with rare bone and mineral conditions.

EuRRECa and EuRR-Bone have been working closely together over the last couple of years and have seamlessly merged their forces under the unified banner of EuRREB: European Registries for Rare Endocrine and Bone conditions.