EuRRECa and EuRR-Bone
EuRRECa and EuRR-Bone are aimed at maximising the opportunity for all patients, health care professionals, and researchers to participate and use high quality, patient-centred registries for rare endocrine and bone/mineral conditions. They work closely together and with the European Reference Networks (ERNs) and are supported by patients, researchers, clinicians, scientific societies, patient societies to build this database.Both the EuRRECa and EuRR-Bone Project Management Team and database are based at the LUMC in Leiden, the Netherlands.
By sharing data and expertise you can directly contribute to improve the quality of life of patients with rare endocrine and bone/mineral conditions. Share, Care, Cure!
EuRRECa
European Registries for Rare Endocrine Conditions
Launched in February 2018, EuRRECa has been funded by the EU Health Programme and is supported by the European Society for Paediatric Endocrinology (ESPE) and the European Society of Endocrinology (ESE).
Since 2022 EuRRECa is part of Endo-ERN. Endo-ERN is the European Reference Network on rare endocrine conditions, which is a collaborative network of expert paediatric and adult endocrine centres in Europe providing healthcare to patients with rare endocrine conditions.
EuRR-Bone
European Registries for Rare Bone and Mineral Conditions
Since 2023 EuRR-Bone is part of ERN BOND. ERN BOND is the European Reference Network on rare bone diseases, which is a collaborative network of expert paediatric and adult endocrine centres in Europe providing healthcare to patients with rare bone and mineral conditions.
