By doing research with our data, you can directly contribute to improve the quality of life of patients with rare endocrine and bone/mineral conditions. Share, Care, Cure!
EuRRECa and EuRR-Bone collect data in two different registries:
- e-REC, an e-reporting programme that captures new clinical encounters
- Core Registry, that collects common and condition-specific datasets. Patients can also contribute to this registry.
With the data we collect you can you do research. You can start or join a Study Groups, create a Secondary Survey or create a Condition Specific Modules.
To obtain obtain registry data from the Core Registry or e-REC you should have a look at our data access policy and complete the necessary forms/agreement.