Steering Committee

The overall aim of the Steering Committee (SC) is to advise our Project Management Team on the direction of the project. The SC acts as a liaison between the professional societies and EuRREB.

Steering Committee

Agnès Linglart

Chair

• Assistance Publique – Hopitaux de Paris

Olaf Dekkers

Data Access Committee Chair

• Leiden University Medical Center

Faisal Ahmed

EuRRECa Project Lead

• University of Glasgow

Natasha Appelman-Dijkstra

EuRR-Bone Project Lead

• Leiden University Medical Center

Alberto Pereira

Endo-ERN coordinator

• Amsterdam UMC, location AMC

Luca Sangiorgi

ERN BOND coordinator

• Istituto Ortopedico Rizzoli di Bologna

Gudmundur Johannsson

ESE representative

• University of Gothenburg

Rasa Verkauskiene

ESPE representative

• Hospital of Lithuanian University of Health Sciences Kauno klinikos

Corinna Grasemann

ECTS representative

• Katholisches Klinikum Bochum

Ciara McDonnell

ISCBH representative

• Children’s Health Ireland, Dublin

Ana Priego Zurita

Registries Quality Committee representative

• Leiden University Medical Center

Ingunn Westerheim

ERN BOND Patient Representative

• Osteogenesis Imperfecta Federation Europe

Petra Brügmann

Endo-ERN Patient Representative

• EMENA – The European MEN Alliance

Zdeněk Šumnik

Member

• University Hospital Motol

Domenica Taruscio

Member

• Istituto Ortopedico Rizzoli di Bologna

Martine Cools

Member

• Ghent University Hospital

Marina Mordenti

Member

• Istituto Ortopedico Rizzoli di Bologna

• Steering Committee remit (, 134 KB)
• Steering Committee Declarations of Interest (, 176 KB)