Steering Committee
The overall aim of the Steering Committee (SC) is to advise the EuRRECa/EuRR-Bone project group on the direction of the project. The SC acts as a liaison between the professional societies and EuRRECa / EuRR-Bone.
| Name | Organisation | Role |
|---|---|---|
| Agnès Linglart | Assistance Publique–Hopitaux de Paris | Chair |
| Olaf Dekkers | Leiden University Medical Center | Data Access Committee Chair |
| Faisal Ahmed | University of Glasgow Leiden University Medical Center | EuRRECa Project Lead |
| Natasha Appelman-Dijkstra | Leiden University Medical Center | EuRR-Bone Project Lead |
| Alberto Pereira | Amsterdam Medical Center | Endo-ERN coordinator |
| Luca Sangiorgi | Istituto Ortopedico Rizzoli di Bologna | ERN BOND coordinator |
| Gudmundur Johannsson | University of Gothenburg | ESE representative |
| Rasa Verkauskiene | Kauno Klinikos | ESPE representative |
| Corinna Grasemann | Children’s Hospital Bochum | ECTS representative |
| Ana Priego | Leiden University Medical Center | Quality Platform representative |
| Ingunn Westerheim | Patient representative | |
| Endo-ERN patient (tbc) | Patient representative | |
| Zdeněk Šumnik | University Hospital Motol Prague | Member |
| Domenica Taruscio | National Center for Rare Diseases Istituto Superiore di Sanità |
Member |
| Martine Cools | Ghent University | Member |
| Marina Mordenti | Istituto Ortopedico Rizzoli di Bologna | Member |
