Leiden, Netherlands – Elise Roeleveld, a medical student at Leiden University Medical Centre (LUMC), has recently completed a notable research internship at the European Registries for Rare Endocrine and Bone Conditions (EuRREB)....

Celebrating Success! Our EuRREB Symposium 2024 was a great success! Held on Monday April 22nd at the Radisson Blu hotel in Milan, Italy, it was an incredible gathering of passionate individuals dedicated to advancing research and improving the quality of patient care...

We are excited to announce our most advanced release of the e-REC platform dashboard so far! Check out our newest features after our recent e-REC platform dashboard update. We now show the counting cases per general condition group of the electronic REporting of new...

On behalf of the Osteogenesis Imperfecta Study Group within the Core Registry platform we invite you to participate in the upcoming "Pain Study in Osteogenesis Imperfecta (OI)." This initiative seeks to comprehensively evaluate chronic and acute pain experiences and...

The European Pediatric Differentiated Thyroid Carcinoma (ped-DTC) Study Group proudly announces the launch of its specialized module. This module, initiated in January 2024, aims to advance understanding and treatment outcomes for pediatric patients diagnosed with...

This condition specific module was launched in October 2023 and is the work of the Gender Incongruence Study Group. The access to transgender healthcare, especially for children and adolescents, varies extremely across Europe, depending on where they live. In some...

Our website is now accessible to accommodate all visitors and users, including people with disabilities. Our website visitors who are visually impaired can use our new accessibility tool. Click on the accessibility icon in the top right corner of our website and check...

Find out everything there is to know about our e-REC and Core Registry on our: Frequently Asked Questions (FAQ) page. If you still have a question after reading the FAQ's, please contact us at [mail-main]. In addition to our FAQ page for professionals we also have a...

Are you interested in putting data of your patients with rare endocrine and bone/mineral conditions into our registries, but need help to get started? We can show you how to enter the data and answer any questions you might have related to our registries. Drop-in for...

Study Groups are composed of experts from different disciplines including patient representatives. Each group brings together their expertise to accomplish its objectives. These might include developing research projects within the registries such as developing...