PROMs – Patient Reported Outcome Measures

Patient-reported outcome measures (PROMs) are specific tools (questionnaires), designed to evaluate different aspects of patients’ quality of life. With a wide range of PROMs available it is difficult to choose the appropriate tool. At EuRREB, this decision is made together with our study group experts and patient representatives.

We welcome discussions about the selection of PROMs. Factors such as licensing costs and the availability of translations into different languages also play a role in the decision-making process.

Overview all patient tools in our platform:

• EQ-5D – is a standardized measure of health-related quality of life developed by the EuroQol Group to provide a simple, generic questionnaire for use in clinical and economic appraisal and population health surveys.
• BPI – the Brief Pain Inventory is one of the most widely used measurement tools for assessing clinical pain.
• WHO-ICF mobility – the International Classification of Functioning, Disability and Health (ICF) aims to provide a unified and standard language and framework for the description of health and health-related states.
• MSK-HQ – is a short questionnaire that allows people with musculoskeletal conditions (such as arthritis or back pain) to report their symptoms and quality of life in a standardized way.
• NPSI – Neuropathic Pain Symptom Inventory was developed to evaluate the different symptoms of neuropathic pain and to help in differentiating of different types of pain.
• OHIP-14 – is a short form of the questionnaire to measure self-reported dysfunction, discomfort and disability attributed to oral conditions.
• PHPQoL – is a questionnaire to assess the quality of life of patients with primary hyperparathyroidism (calcium related problems).

If you want to know more about our PROMs you can always ask your doctor or contact us at registries@lumc.nl.