Privacy

Privacy

EuRRECa and EuRR-Bone (EuRREB) is committed to user’s privacy and does not track personal data when visiting our website. We act in accordance with Regulation 2016/679 of the European Parliament and of the Council.

For any questions regarding our privacy policy, please read the LUMC privacy statement.

‘Personal data’ means any information relating to an identified or identifiable natural person. An identifiable natural person is one who can be identified, directly or indirectly, in particular by reference to an identifier such as:

  • a name
  • an identification number
  • location data
  • an online identifier or to one or more factors specific to the physical, physiological, genetic, mental, economic, cultural or social identity of that natural person

You have the right to be forgotten and removed completely from the EuRREB contact database. To request this, please contact us at registries@lumc.nl.

Cookies

EuRREB only tracks anonymised data for statistical purposes. We (can) do this via analytical cookies, placed through an anonymous IP Google analytics tag. The purpose of these cookies are to track the efficiency and success of the website.

These cookies do not store any personal data that can be linked to a natural person, but may save data such as inter alia, data about the website from which a person has come (the so-called referrer), which sub-pages were visited, or how often and for what duration a sub-page was viewed. The data collected through this is general data only, and cannot be traced back to one person.

It is possible to prevent the setting of cookies, by means of a setting of the Internet browser used. On top of that, already set cookies may be deleted at any time via an Internet browser or other software programs. This is possible in all popular Internet browsers.

Google Analytics does not share any data with third parties.

The principles of data protection do not apply to anonymous information and because these cookies minimally impact the privacy of the user, it is not necessary to ask for permission to use these cookies.

Newsletter

You may always unsubscribe from our newsletter at any time through the unsubscribe button located in our newsletter. EuRREB is both the controller and responsible for processing of any data regarding the newsletter. EuRREB does not make use of a third party for the Newsletter service.

E-services

EuRREB has a contact form, which activates your email software and allows you to send a comment or question to a general email address. When you send such a message, your personal data is collected only to the extent necessary to reply. If the team responsible for the mailbox is unable to answer your question, or your questions has regards to another party, it might forward your email to another service.

If you have any questions about the processing of your email and related personal data, do not hesitate to include them in your message.

The collected personal data and all information related to the above mentioned consultation is stored on the email server of the EuRREB Coordinating office and potentially those who have been concerned in the correspondence in order to respond to your comment.

Newsletter Tracking

The EuRREB newsletter makes use of tracking in order to be able to conduct a statistical analysis of the success or failure of online marketing campaigns. EuRREB may see if an email containing a newsletter was opened by a user, when it was opened, and which links were opened. The data collected through this tracking is generated and stored by EuRREB and is not shared with third parties, but may be used to adapt future content of newsletters in order to better meet the interests of our subscribers.

Contact details

EuRRECa and EuRR-Bone
Coordinating Centre
Leiden University Medical Center
Department of Endocrinology

Albinusdreef 2
2333 ZA  LEIDEN
The Netherlands