Lead: Agnès Linglart |
pediatric endocrinologist |
CHU Paris-Sud – Hôpital de Bicêtre, France |
Diana Alexandra Ertl |
pediatric endocrinologist |
CHU Paris-Sud – Hôpital de Bicêtre, France |
Maria Luisa Brandi |
endocrinologist |
Fondazione FIRMO Onlus, Fondazione Italiana per la Ricerca sulle Malattie dell’Osso, Donatello Bone Clinic, Casa di Cura Villa Donatello, Sesto Fiorentino, Italy |
Adalbert Raimann |
pediatric endocrinologist |
Medical University of Vienna, Austria |
Oliver Gardiner |
patient representative |
XLH Alliance |
Ana Priego Zurita |
pediatric endocrinologist, EuRREB quality manager |
Leiden University Medical Center, the Netherlands |
Tenna Toft |
patient representative, ePAG ERN BOND |
XLH Alliance |
Martha Kirchhof |
patient representative, ePAG Endo-ERN |
Phosphatdiabetes E.V. |
Gabriel Mindler |
pediatric orthopaedic surgeon |
Orthopedic Hospital Speising and Vienna Bone and Growth Center, Austria |
Marine de Tienda |
pediatric orthopaedic surgeon |
CHU Necker Enfants Malades, France |
Karine Briot |
rheumatologist |
Cochin Hospital, France |
Peter Kamenicky |
endocrinologist |
Bicêtre Paris-Sud Hospital, France |
Ola Nilsson |
pediatric endocrinologist |
Karolinska Institute, Sweden |
Carola Zillikens |
endocrinologist |
Erasmus Medical Center, the Netherlands |
Daniëlle van der Kaay |
pediatric endocrinologist |
Erasmus Medical Center, the Netherlands |