Study Groups

Study Groups are composed of experts from different disciplines including patient representatives. Each group brings together their expertise to accomplish its objectives. These might include developing research projects within the registries such as developing condition specific modules.

Overview of Study Groups

• Achondroplasia
• Fibrous Dysplasia / McCune Albright Syndrome (FD/MAS)
• iPPSD/PHP
• Melorheostosis
• Osteogenesis Imperfecta (OI)
• Parathyroid Carcinoma
• Pituitary Tumour
• Rare Hypophosphataemia
• Rare Obesity