Fibrous Dysplasia / McCune Albright Syndrome (FD/MAS)

Study Group:

Study Group: Fibrous Dysplasia / McCune Albright Syndrome (FD/MAS)

Name(s) Expertise / Role Organisation
Lead: Natasha Appelman-Dijkstra EuRR-Bone coordinator, endocrinologist Leiden University Medical Center, the Netherlands
Roland Chapurlat rheumatologist INSERM, France
Gaby Doxiadis patient representative Dutch FD/MAS foundation, the Netherlands
Kassim Javaid rheumatologist NDORMS, University of Oxford, UK
Diana Ovejero Crespo endocrinologist Hospital del Mar,
Barcelona
, Spain
Daniele Tessaris pediatric endocrinologist Regina Margherita Children’s Hospital, Italy
Jamie Watson patient representative Fibrous Dysplasia Support Society, UK
Nerea Arrieta Urriategi
Magdalena Caballero Campos
patient representatives Fibrous Dysplasia, Spain
Ana Priego Zurita EuRR-Bone/EuRRECa fellow, pediatric endocrinologist Leiden University Medical Center,
the Netherlands
Lothar Seefried orthopedic surgeon University Hospital at the Julius-Maximilians University, Germany