Osteogenesis Imperfecta (OI)

Study Group:

Osteogenesis Imperfecta (OI)

Name(s) Expertise / Role Organisation
Lead: Wolfgang Högler pediatric endocrinologist Johannes Kepler University
Linz, Austria
Ralf Oheim osteologist Universitätsklinikum Hamburg-Eppendorf, Germany
Rebecca Skarberg-Tvedt patient representative, ePAG ERN BOND OIFE
Ingunn Westerheim patient representative OIFE
Eva Åström pediatrician Karolinska Institutet, Sweden
Meena Balasubramanian clinical geneticist Sheffield Children’s Hospital,
United Kingdom
Hans-Georg Zmierczak rheumatologist University Hospital Ghent, Belgium
Carola Zillikens endocrinologist Erasmus Medical Center,
the Netherlands
Anton Franken, endocrinologist Isala Clinics Zwolle, the Netherlands
Claudia Finis patient representative OI foundation, Germany
Taco van Welzenis patient representative OI foundation, the Netherlands
Dagmar Mekking representative and project manager Key4OI Care4Brittle Bones