Study Group:
Study Group: Rare Hypophosphataemia
| Name(s) | Expertise / Role | Organisation |
|---|---|---|
| Lead: Agnès Linglart | pediatric endocrinologist | CHU Paris-Sud – Hôpital de Bicêtre, France |
| Diana Alexandra Ertl | pediatric endocrinologist | CHU Paris-Sud – Hôpital de Bicêtre, France |
| Maria Luisa Brandi | endocrinologist | Fondazione FIRMO Onlus, Fondazione Italiana per la Ricerca sulle Malattie dell’Osso, Donatello Bone Clinic, Casa di Cura Villa Donatello, Sesto Fiorentino, Italy |
| Adalbert Raimann | pediatric endocrinologist | Medical University of Vienna, Austria |
| Oliver Gardiner | patient representative | XLH Alliance |
| Ana Priego Zurita | EuRR-Bone/EuRRECa fellow, pediatric endocrinologist | Leiden University Medical Center, the Netherlands |
| Tenna Toft | patient representative, ePAG ERN BOND | XLH Alliance |
| Martha Kirchhof | patient representative, ePAG Endo-ERN | Phosphatdiabetes E.V. |
| Gabriel Mindler | pediatric orthopaedic surgeon | Orthopedic Hospital Speising and Vienna Bone and Growth Center, Austria |
| Marine de Tienda | pediatric orthopaedic surgeon | CHU Necker Enfants Malades, France |
| Karine Briot | rheumatologist | Cochin Hospital, France |
| Peter Kamenicky | endocrinologist | Bicêtre Paris-Sud Hospital, France |
| Ola Nilsson | pediatric endocrinologist | Karolinska Institute, Sweden |
| Carola Zillikens | endocrinologist | Erasmus Medical Center, the Netherlands |
| Daniëlle van der Kaay | pediatric endocrinologist | Erasmus Medical Center, the Netherlands |
