Publication
Feasibility of transition research in pituitary disease using patient registries: a EuRREB secondary survey

We are pleased to share our latest publication: “Feasibility of transition research in pituitary disease using joint adult–paediatric endocrinology care”, available in the Endocrine Connections on December 2, 2025.  Read the full publication here

Why is this important?

  • The transition from paediatric to adult healthcare is a vulnerable phase for many patients with chronic endocrine conditions. Continuity of care can be disrupted, and important follow-up may be lost.
  • This publication systematically evaluates whether “transition research” in pituitary disease is practically achievable within a joint adult–paediatric endocrinology care setting.
  • It provides an essential first step toward better understanding long-term outcomes after transition and improving transition processes.

What did the study investigate?

  • The study assessed the feasibility of collecting data and conducting structured research during the paediatric-to-adult care transition in patients with pituitary disorders.
  • While some challenges were identified — such as data collection barriers and maintaining continuity — the authors conclude that transition research is feasible, provided that appropriate collaboration and systems are in place.
  • This finding opens the door to future outcome-focused studies, including those examining long-term health, quality of life, and adherence to treatment.

Implications for the endocrine community and patients

  • For researchers: the study shows that setting up transition-related cohorts or registries in pituitary disease is realistic and valuable.
  • For clinicians: it underlines the importance of well-structured transition care and close collaboration between paediatric and adult endocrine teams.
  • For patients and advocacy groups: improved transition pathways and evidence-based follow-up can lead to better long-term outcomes and more personalised care.

Conclusion

This publication provides promising evidence that transition research in pituitary disease is achievable. It offers a foundation for larger studies and future registry-based approaches that can further illuminate outcomes across the transition period. The findings contribute to the ongoing effort to optimise transition care within the endocrine field.