About EuRREB

EuRREB – European Registries for Rare Endocrine and Bone conditions supports patients, healthcare professionals, and researchers in addressing the challenges of rare endocrine and bone/mineral diseases. Our mission is to advance research and improve treatment for those affected by these conditions. Through our key registries, e-REC and Core, we provide a platform for collecting vital data and fostering collaborative research across Europe.

EuRREB is the merging of EuRRECa – European Registries for Rare Endocrine Conditions, and EuRR-Bone – European Registries for Rare Bone and Mineral Conditions. We serve and work closely together with the European Reference Networks (ERNs): Endo-ERN and ERN BOND. 

We are also supported by patients, researchers, clinicians, scientific societies and patient societies to build this database. Together, we are building a brighter future for those affected by these rare diseases. Want to contribute to groundbreaking research and help improve treatments for rare endocrine and bone conditions? Discover how you can be a part of this important mission.

Our Project Management Team and database is based at the LUMC in Leiden, the Netherlands.

By sharing data and expertise you can directly contribute to help improve the quality of life of patients with rare endocrine and bone conditions.

Share, Care, Cure!

Background 

EuRRECa and EuRR-Bone have been working closely together over the last couple of years and have seamlessly merged their forces under the unified banner of EuRREB: European Registries for Rare Endocrine and Bone conditions.

Because EuRR-Bone, rare bone and mineral conditions, had a lot in common with EuRRECa, rare endocrine conditions, the project was welcome to use EuRRECa’s platform for the data collection. The merging of the two projects started when the data servers and the project management of EuRRECa moved from Glasgow, Scotland to Leiden, the Netherlands due to the Brexit in 2022. In 2023 we launched a new combined website: eurreb.eu but we kept the two project names with two separate logo’s, just to give people some time to get used to the fact that we are not only sharing a platform, but also the same project management team and website.

After two years in 2025 we have matured enough to fully embrace EuRREB serving two ERNs with a team of 6 in Leiden, the Netherlands.

EuRRECa – European Registries for Rare Endocrine Conditions

EuRR-Bone – European Registries for Rare Bone/Mineral Conditions

EuRR-Bone was founded in April 2020 in Leiden, the Netherlands. EuRR-Bone has been funded by the EU Health Programme and supported by the European Calcified Tissue Society (ECTS), and the International Osteoporosis Foundation (IOF).

Since 2023 EuRR-Bone is part of ERN BOND. ERN BOND is the European Reference Network on rare bone diseases, which is a collaborative network of expert paediatric and adult endocrine centres in Europe providing healthcare to patients with rare bone and mineral conditions.