Skip to content

Patients overview

Patients are at the heart of our registries. They are not only the focus of our work but also active participants in it. By logging in and answering surveys, they contribute directly to research. Additionally, patient representatives play a key role in all our studies and committees.

General Registries Information

More information about what we do

Patient Information

More information on what it means to be a patient particapting in the registries

Contribute as a Patient

Patients can contribute to the registries in different ways

Tools and Outcomes

Learn more about the surveys that you can fill out on the platform and what their results mean

Patients FAQ

Find here the answers to frequently asked questions by patients