Patients overview
Patients are at the heart of our registries. They are not only the focus of our work but also active participants in it. By logging in and answering surveys, they contribute directly to research. Additionally, patient representatives play a key role in all our studies and committees.
General Registries Information
More information about what we do
Patient Information
More information on what it means to be a patient particapting in the registries
Contribute as a Patient
Patients can contribute to the registries in different ways
Tools and Outcomes
Learn more about the surveys that you can fill out on the platform and what their results mean
Patients FAQ
Find here the answers to frequently asked questions by patients