Data Access Committee
The overall aim of the Data Access Committee (DAC) is to promote the wider use of the data that are being collected in the EuRREB Core Registry and e-REC through a transparent and simple approach.
| Name | Organisation | Role / Representing |
|---|---|---|
| Olaf Dekkers | Leiden University Medical Center | Chair |
| Natasha Appelman-Dijkstra | Leiden University Medical Center | EuRREB Coordinator |
| Agnès Linglart | Assistance Publique–Hopitaux de Paris | Chair Steering Committee |
| Pietro Maffei | Azienda Ospedaliera di Padova | Endo-ERN |
| Olaf Hiort | University of Lübeck | ESPE |
| Kristi Alexandraki | National and Kapodistrian University of Athens | ESE |
| Thomas Funck-Brentano | Assistance Publique–Hopitaux de Paris | ECTS |
| Ciara McDonnell | Children’s Health Ireland, Dublin | ISCBH |
| Adalbert Raimann | Vienna Bone & Growth Centre | ISCBH |
| Tenna Toft | XLH Alliance | Patient Representative |
| Gabriele Hartmann | Vienna Bone & Growth Centre | Bone Expert |
| Mariya Cherenko | Leiden University Medical Center | EuRREB Data Manager |