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EuRREB – the European Registries for Rare Endocrine and Bone conditions consists of EuRRECa and EuRR-Bone. The registries aim to maximize the opportunity for all patients, healthcare professionals, and researchers to participate and use high quality, patient-centred registries for rare endocrine and bone/mineral conditions. We work closely together with Endo-ERN and ERN BOND and are supported by patients, researchers, clinicians, scientific societies, patient societies to build this database.

Europe’s Resource for Rare Endocrine and Bone Conditions

Our goal is to be Europe’s most comprehensive and accessible resource for researchers studying rare endocrine and bone conditions.

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Collaboration with ERN-EuroBloodNet for Langerhans Cell Histiocytosis

EuRREB is currently creating a module for endocrine and bone complications in Langerhans Cell Histiocytosis in collaboration with the ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases). Langerhans Cell Histiocytosis is a haematological condition with manifestations in many systems. Therefore, Endo-ERN, ERN BOND and ERN-EuroBloodNet have joined efforts to collect [...]

New Participating Centres website page

Now showcasing all our Participating Centres on our website! We are excited to introduce our new Participating Centres website page on our website. This new page provides a comprehensive overview of all the contributing centres and their participation in our different platforms, showcasing the collaborative spirit that drives EuRREB forward. [...]