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The European Registries for Rare Endocrine and Bone Conditions consists of EuRRECa and EuRR-Bone. The registries are aimed at maximising the opportunity for all patients, health care professionals, and researchers to participate and use high quality, patient-centred registries for rare endocrine and bone/mineral conditions. They work closely together and with Endo-ERN and ERN BOND and are supported by patients, researchers, clinicians, scientific societies, patient societies to build this database.

Europe’s Resource for Rare Endocrine and Bone Conditions

Our goal is to be Europe’s most comprehensive and accessible resource for researchers studying rare endocrine and bone conditions.

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Research

Need help getting up and running with our registries?

Are you interested in putting data of your patients with rare endocrine and bone/mineral conditions into our registries, but need help to get started? We can show you how to enter the data and answer any questions you might have related to our registries. Drop-in for one of our online [...]

Would you like to join one of our Study Groups?

Study Groups are composed of experts from different disciplines including patient representatives. Each group brings together their expertise to accomplish its objectives. These might include developing research projects within the registries such as developing condition specific modules. At the moment we are in need of a pediatric surgeon in our [...]

Successful first joint EuRRECa / EuRR-Bone symposium!

On Monday April 3rd 2023, the first joint EuRRECa/EuRR-Bone symposium took place in Leiden, the Netherlands. With participants representing 11 countries [...]