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EuRREB – the European Registries for Rare Endocrine and Bone conditions consists of EuRRECa and EuRR-Bone. The registries aim to maximize the opportunity for all patients, healthcare professionals, and researchers to participate and use high quality, patient-centred registries for rare endocrine and bone/mineral conditions. We work closely together with Endo-ERN and ERN BOND and are supported by patients, researchers, clinicians, scientific societies, patient societies to build this database.

Europe’s Resource for Rare Endocrine and Bone Conditions

Our goal is to be Europe’s most comprehensive and accessible resource for researchers studying rare endocrine and bone conditions.

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European grant for the database for rare endocrine and bone disorders

The Leiden University Medical Center (LUMC) receives an European grant for the database for rare endocrine and bone disorders. The LUMC Endocrine department was granted 1.7 million by the European Commission to further develop the database for rare endocrine and bone disorders and to develop guidelines for these disorders. Prof. [...]

New EuRREB Publication: Venous Thromboembolism in Cushing Syndrome

We are pleased to announce the release of a comprehensive new EuRREB publication: “Venous Thromboembolism in Cushing Syndrome: Results from an EuRRECa and Endo-ERN Survey”. This new EuRREB publication: “Venous Thromboembolism in Cushing Syndrome” is pivotal research that sheds light on the prevalence and management of venous thromboembolism (VTE) in [...]

Leiden University Medical Center appoints Professor Dr. Natasha Appelman-Dijkstra

As of 1 June 2024, the Leiden University Medical Center (LUMC) is pleased to announce the appointment of Professor Dr. Natasha [...]

Medical Student Advances Research on Pituitary Adenomas at EuRREB

Leiden, Netherlands – Elise Roeleveld, a medical student at Leiden University Medical Centre (LUMC), has recently completed a notable research internship [...]