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European Registries for Rare Endocrine and Bone Conditions

Drop-in Sessions

Drop-in Sessions

Join our next platform drop-in session. Here you will get all updates we receive.

Next sessions is 23th april 14:00 to 15:00 CET

Join now

Research

Research

Use e-REC to easily capture new clinical encounters, or use the Core Registry for in-depth, long-term patient data collection and research, with common data elements and condition-specific modules.

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Europe’s Resource for Rare Endocrine and Bone Conditions

EuRREB supports healthcare professionals, researchers, and patients in collecting data through patient-centered registries and enabling collaborative research across Europe to improve care for those affected by rare endocrine and bone diseases.

Together, we advance care for rare diseases
Improving knowledge
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Accelerating research
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Empowering patients
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Shaping better policies
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Transforming lives

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participating centres

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countries

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new patients seen by a centre

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cases with detailed information
reported by clinicians and patients