more data, better outcomes

Home

Welcome

The European Registries for Rare Endocrine and Bone Conditions consists of EuRRECa and EuRR-Bone. The registries are aimed at maximising the opportunity for all patients, health care professionals, and researchers to participate and use high quality, patient-centred registries for rare endocrine and bone/mineral conditions. They work closely together and with Endo-ERN and ERN BOND and are supported by patients, researchers, clinicians, scientific societies, patient societies to build this database.

Europe’s Resource for Rare Endocrine and Bone Conditions

Our goal is to be Europe’s most comprehensive and accessible resource for researchers studying rare endocrine and bone conditions.

Patients

Research

Congratulations Faisal!

Congratulations to EuRRECa project leader Professor Faisal Ahmed from University of Glasgow for his appointment at the University of Leiden as Professor of Endocrine Registries. His inspiring Inaugural Lecture was held Monday 3 April. The topic Strength in Numbers explained the importance of having high quality, patient-centred registries for rare [...]

Final EuRR-Bone meeting

We would like to thank everyone online and in person for their contribution to a successful final meeting on Monday 13 February! We had fruitful discussions and it was nice looking back at all the work we have done of the past three years.

ESPE 2023 Annual Meeting

The 61st Annual European Society for Paediatric Endocrinology (ESPE) will take place 21-23 September in The Hague, Netherlands. The theme that [...]

Successful first joint EuRRECa / EuRR-Bone symposium!

On Monday April 3rd 2023, the first joint EuRRECa/EuRR-Bone symposium took place in Leiden, the Netherlands. With participants representing 11 countries [...]