New Module Launch: Multiple Endocrine Neoplasia type 1 (MEN-1)

We are excited to announce that the Multiple Endocrine Neoplasia type 1 (MEN-1) module is now live on the Core Registry platform!

This condition-specific module activates automatically once a patient with MEN1 is entered into the system – making data collection seamless and efficient.

What does the module include?

  • Clinical manifestation (at presentation and during the life-course)
  • Genetic testing;
  • Treatment

 Specific focus on

  • distant metastases from duodeno-pancreatic neuro-endocrine tumours (DPNETs)
  • breast cancer
  • very aggressive forms of MEN-1 manifestations (adrenocortical carcinoma, pituitary carcinoma, parathyroid carcinoma, other aggressive NETs)

The full data dictionary is available for download.

Explore the platform and learn more about the module.

For more information regarding this module or our other modules, please contact registries@lumc.nl.