Data Dictionaries
Please find here the data dictionaries for e-REC, Core Registry and the Condition Specific Modules. If you are missing a condition or have a question regarding the dictionaries, please contact the Registries Team at registries@lumc.nl.
e-REC
e-REC conditions and diagnosis dictionary (Download, 24 KB)
Core Registry
Core Registry data dictionary (Download, 2 MB)
Core Registry conditions and diagnosis dictionary (Download, 64 KB)
In the e-REC and Core Registry data dictionaries above, we use different disease classifications to code the conditions we cover. With the ORPHA code Data Viewer healthcare professionals can efficiently search and navigate disease classifications. This user-friendly tool allows you to search by various codes and terms, making it easier to access information about rare conditions.
Condition Specific Modules
Achondroplasia data dictionary (Download, 43 KB)
Fibrous Dysplasia / McCune Albright Syndrome (FD/MAS) data dictionary (Download, 59 KB)
Gender Incongruence data dictionary (Download, 30 KB)
iPPSD/PHP data dictionary (Download, 86 KB)
Melorheostosis data dictionary (Download, 52 KB)
Osteogenesis Imperfecta (OI) data dictionary (Download, 63 KB)
Parathyroid Carcinoma data dictionary (Download, 172 KB)
Pediatric Differentiated Thyroid Carcinoma data dictionary (Download, 59 KB)
Pituitary Tumour data dictionary (Download, 30 KB)
Rare Hypophosphataemia data dictionary (Download, 69 KB)
Rare Obesity data dictionary (Download, 38 KB)