Why join and contribute data to EuRREB registries?

EuRREB – European Registries for Rare Endocrine and Bone conditions supports patients, healthcare professionals, and researchers by collecting data on rare endocrine and bone diseases. Our mission is to improve research, care and treatment for those affected by these rare diseases. Through our two key registries, e-REC and Core Registry, we offer a platform to collect essential data and foster collaborative research across Europe.

Join the growing EuRREB network and contribute to advancing knowledge and care for patients with rare endocrine and bone conditions. By becoming a participating centre you are contributing valuable clinical data and you can:

  • Participate in collaborative international research studies
  • Co-author scientific publications
  • Connect with a European network of experts
  • Gain insights from international registry data
  • Improve care for patients with rare endocrine and bone diseases

As a patient you can also contribute, please go the patient section of our website and find out more!

Check the list of our participating centres across Europe. Find out how your centre can join and become a participating centre or contact us: registries@lumc.nl

By signing our Joint Data Registry Agreement (JDRA), registering for an account and entering data into our e-REC and Core Registry platform you are an active participating centre. However your centre can contribute more!

If your centre has signed our JDRA, more departments within your hospital can contribute data on rare endocrine and bone conditions. Share this information from our website with relevant colleagues and departments within your hospital to help identify more patients, improve research, and strengthen care for rare endocrine and bone conditions.

Please find below the relevant departments within your hospital and send them the information about EuRREB.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Visit this page for an up-to-date overview of all our condition-specific modules.

Find out how your centre can join and become a particpating centre or contact us at: registries@lumc.nl