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About overview

EuRREB stands for European Registries for Rare Endocrine and Bone conditions. EuRREB is part of two European Reference Networks (ERNs): Endo-ERN and ERN BOND.

About EuRREB

Find out about our history and how we became EuRREB

Mission and Vision

How we see the future and how we are planning to achieve our goals

Our Committees

The daily operations of the EuRREB Registries are managed by the Project Management Team, who are supported by three committees.

Steering Committee

The Steering Committee advises the Project Management Team on the direction of EuRREB

Data Access Committee

The Data Access Committee promotes the wider use of data collected in EuRREB

Patient Advisory Board

Patient representatives with knowledge and expertise in rare endocrine and bone conditions