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Affiliate Registries

Signposting health care providers and patients to high quality detailed condition registries is one of the central aims of EuRREB. We achieve this aim by developing a list of affiliate registries:

 

Registry Description Contact
Crescnet Network for continious and long-term monitoring of growth and weight development in children in Germany info@crescnet.org
Eclip Registry Global registry in the field of lipodystrophy. It aims to accumulate sufficient data for sound research in this area help-eclip-registry@uniklinik-ulm.de
GloBE-Reg Global registry for novel therapies in rare bone & endocrine conditions info@globe-reg.net
SDM Registries International registries for rare conditions affecting Sex Development & Maturation sdmregistries.org/contact/