Affiliate Registries
Signposting health care providers and patients to high quality detailed condition registries is one of the central aims of EuRREB. We achieve this aim by developing a list of affiliate registries:
Registry | Description | Contact |
---|---|---|
Crescnet | Network for continious and long-term monitoring of growth and weight development in children in Germany | info@crescnet.org |
Eclip Registry | Global registry in the field of lipodystrophy. It aims to accumulate sufficient data for sound research in this area | help-eclip-registry@uniklinik-ulm.de |
GloBE-Reg | Global registry for novel therapies in rare bone & endocrine conditions | info@globe-reg.net |
SDM Registries | International registries for rare conditions affecting Sex Development & Maturation | sdmregistries.org/contact/ |