SDM Registries

SDM Registries (formerly known as I-DSD/I-CAH/I-TS) is a registry platform that allows the sharing of knowledge and experience of a wide range of rare conditions affecting sex development and maturation. The registry allows experts to work collaboratively at improving clinical practice, research and understanding.

It has a network that reaches 200 centres in 57 countries on all the continents. Of these, around 152 centres from over 46 countries use the registries and have entered around 9,500 cases where information can be shared for a range of purposes that have the ultimate aim of improving the health of people with these rare conditions.

Project lead: Professor Faisal Ahmed (Glasgow).

You can find more detailed information on: www.sdmregistries.org