Data Access Committee
The overall aim of the Data Access Committee (DAC) is to promote the wider use of the data that are being collected in the EuRREB Core Registry and e-REC through a transparent and simple approach.
| Name | Organisation | Role / Representing |
|---|---|---|
| Olaf Dekkers | Leiden University Medical Center | Chair |
| Faisal Ahmed | University of Glasgow and Leiden University Medical Center |
EuRREB Pediatric Lead |
| Natasha Appelman-Dijkstra | Leiden University Medical Center | EuRREB Adult Lead |
| Agnès Linglart | Assistance Publique–Hopitaux de Paris | Chair of Steering Committee |
| Pietro Maffei | Azienda Ospedaliera di Padova | Endo-ERN |
| Olaf Hiort | University of Lübeck | ESPE |
| Carola Zillikens | Erasmus Medical Center, Rotterdam | ECTS |
| Kristi Alexandraki | National and Kapodistrian University of Athens | ESE |
| Ciara McDonnell | Children’s Health Ireland, Dublin | ISCBH |
| Adalbert Raimann | Vienna Bone & Growth Centre | ISCBH |
| Tenna Toft | XLH Alliance | Patient Representative |
| Gabriele Hartmann | Vienna Bone & Growth Centre | Bone Expert |
| Roland Chapurlat | INSERM | Bone Expert |
| Mariya Cherenko | Leiden University Medical Center | Data Manager |