by sabine | Jul 1, 2024 | Publication
Venous thromboembolism in Cushing syndrome: results from an EuRRECa and Endo-ERN survey Background: Patients with Cushing syndrome (CS) are at increased risk of venous thromboembolism (VTE). Objective: To evaluate current management of new cases of CS with a focus on...by sabine | Mar 16, 2024 | Publication
The Role of the European Reference Network for Rare Bone Diseases (ERN BOND) and European Registries for Rare Bone and Mineral Conditions (EuRR-Bone) in the Governance of the Management of Rare Bone and Mineral Diseases Abstract Rare diseases (RDs) bear a significant...by sabine | Jul 1, 2023 | Publication
Background Information on clinical outcomes of coronavirus disease 19 (COVID-19) infection in patients with adrenal disorders is scarce. Methods A collaboration between the European Society of Endocrinology (ESE) Rare Disease Committee and European Reference Network...by sabine | Jun 1, 2023 | Publication
Development of a pediatric differentiated thyroid carcinoma registry within the EuRRECa project: rationale and protocol Background Although differentiated thyroid carcinoma (DTC) is the most frequent endocrine pediatric cancer, it is rare in childhood and adolescence....by sabine | Apr 1, 2023 | Publication
Electronic reporting of rare endocrine conditions within a clinical network: results from the EuRRECa project Objective The European Registries for Rare Endocrine Conditions (EuRRECa, eurreb.eu) includes an e-reporting registry (e-REC) used to perform surveillance of...