by sabine | Feb 1, 2023 | Publication
Data collection on rare bone and mineral conditions in Europe: The landscape of registries and databases Read publication Overview publication Title Data collection on rare bone and mineral conditions in Europe: The landscape of registries and databases Date December...by sabine | Aug 1, 2022 | Publication
Prenatal dexamethasone treatment for classic 21-hydroxylase deficiency in Europe Objective To assess the current medical practice in Europe regarding prenatal dexamethasone (Pdex) treatment of congenital adrenal hyperplasia (CAH) due to 21-hydroxylase deficiency....by sabine | Apr 1, 2022 | Publication
The European registry for rare bone and mineral conditions (EuRR-Bone): results of a survey on osteogenesis imperfecta and fibrous dysplasia McCune-Albright syndrome Read publication Overview publication Title The European registry for rare bone and mineral...by sabine | Mar 1, 2022 | Publication
Meeting Report from 2nd ICCBH-ERN BOND Spinal Complications in Children and Adults with Achondroplasia Workshop, Dublin, Ireland, 2nd July 2022 Read publication Overview publication Title Meeting Report from 2nd ICCBH-ERN BOND Spinal Complications in Children and...by sabine | Feb 1, 2022 | Publication
Design and development of a European registry for parathyroid carcinoma cases within the scope of the European Registries for Rare Endocrine Conditions (EuRRECa) Parathyroid carcinoma (PC) is an extremely rare malignant endocrine tumor of the parathyroid glands. Given...