by sabine | Jun 1, 2023 | Publication
Development of a pediatric differentiated thyroid carcinoma registry within the EuRRECa project: rationale and protocol Background Although differentiated thyroid carcinoma (DTC) is the most frequent endocrine pediatric cancer, it is rare in childhood and adolescence....by sabine | Apr 1, 2023 | Publication
Electronic reporting of rare endocrine conditions within a clinical network: results from the EuRRECa project Objective The European Registries for Rare Endocrine Conditions (EuRRECa, eurreb.eu) includes an e-reporting registry (e-REC) used to perform surveillance of...by sabine | Feb 1, 2023 | Publication
Data collection on rare bone and mineral conditions in Europe: The landscape of registries and databases Read publication Overview publication Title Data collection on rare bone and mineral conditions in Europe: The landscape of registries and databases Date December...by sabine | Aug 1, 2022 | Publication
Prenatal dexamethasone treatment for classic 21-hydroxylase deficiency in Europe Objective To assess the current medical practice in Europe regarding prenatal dexamethasone (Pdex) treatment of congenital adrenal hyperplasia (CAH) due to 21-hydroxylase deficiency....by sabine | Apr 1, 2022 | Publication
The European registry for rare bone and mineral conditions (EuRR-Bone): results of a survey on osteogenesis imperfecta and fibrous dysplasia McCune-Albright syndrome Read publication Overview publication Title The European registry for rare bone and mineral...by sabine | Mar 1, 2022 | Publication
Meeting Report from 2nd ICCBH-ERN BOND Spinal Complications in Children and Adults with Achondroplasia Workshop, Dublin, Ireland, 2nd July 2022 Read publication Overview publication Title Meeting Report from 2nd ICCBH-ERN BOND Spinal Complications in Children and...