Data Access Committee
The overall aim of the Data Access Committee (DAC) is to promote the wider use of the data that are being collected in the EuRREB (EuRRECa/EuRR-Bone) Core Registry and e-REC through a transparent and simple approach.
| Name | Organisation | Role / Representing |
|---|---|---|
| Olaf Dekkers | Leiden University Medical Center | Chair |
| Faisal Ahmed | University of Glasgow and Leiden University Medical Center |
EuRRECa PI |
| Natasha Appelman-Dijkstra | Leiden University Medical Center | EuRR-Bone PI |
| Agnès Linglart | Assistance Publique–Hopitaux de Paris | Chair of Steering Committee |
| Pietro Maffei | Azienda Ospedaliera di Padova | Endo-ERN |
| Olaf Hiort | University of Lübeck | ESPE |
| Carola Zillikens | Erasmus Medical Center, Rotterdam | ECTS |
| Kristi Alexandraki | National and Kapodistrian University of Athens | ESE |
| Ciara McDonnell | Children’s Health Ireland, Dublin | ISCBH |
| Adalbert Raimann | Vienna Bone & Growth Centre | ISCBH |
| Arlene Smyth | Office for Rare Conditions, Glasgow and Turner Syndrome Support Society, UK | Endo-ERN Patient Representative |
| Tenna Toft | XLH Alliance | ERN BOND Patient Representative |
| Gabriele Hartmann | Vienna Bone & Growth Centre | Bone Expert |
| Roland Chapurlat | INSERM | Bone Expert |
| Tess de Rooij | Leiden University Medical Center | Project Manager |
