Data Access Committee
The overall aim of the Data Access Committee (DAC) is to promote the wider use of the data that are being collected in the EuRRECa/EuRR-Bone Core Registry and e-REC through a transparent and simple approach.
Name | Organisation | Role / Representing |
---|---|---|
Olaf Dekkers | Leiden University Medical Center | Data access committee chair |
Faisal Ahmed | University of Glasgow Leiden University Medical Center | EuRRECa PI |
Natasha Appelman-Dijkstra | Leiden University Medical Center | EuRR-Bone PI |
Agnès Linglart | Assistance Publique–Hopitaux de Paris | Chair of Steering Committee |
Pietro Maffei | Azienda Ospedaliera di Padova | Endo-ERN |
Olaf Hiort | University of Lübeck | ESPE |
Carola Zillikens | Erasmus Medical Center, Rotterdam | ECTS |
Kristi Alexandraki | National and Kapodistrian University of Athens | ESE |
Tess de Rooij | Leiden University Medical Center | Project Manager |
Arlene Smyth | Office for Rare Conditions, Glasgow and Turner Syndrome Support Society, UK | Endo-ERN ePAG |
Tenna Toft | XLH Alliance | ERN BOND ePAG |
Gabriele Hartmann | Medical University of Vienna | Bone Expert |
Roland Chapurlat | INSERM | Bone Expert |