by Jacqueline van der Blom | Nov 6, 2025 | General
The European Commission has opened a consultation on the draft Multiannual Financial Framework (MFF) – the EU’s long-term budget plan. In the current proposal, rare diseases are not explicitly mentioned, and the EU4Health programme no longer appears as a...
by Jacqueline van der Blom | Oct 6, 2025 | Publication
New EuRREB Publication: Gender Incongruence Module We are pleased to share the publication of a new EuRREB article: “The Gender Incongruence module in the European Registries for Rare Endocrine & Bone Conditions (EuRREB): first results, current insights and...
by Jacqueline van der Blom | Sep 18, 2025 | General
Congratulations to Professor Natasha Appelman-Dijkstra, Professor of Internal Medicine in Bone and Mineral Disorders, on her inspiring inaugural lecture held on Friday 12 September. In her inaugural lecture As Long as the Quality is Assured, Professor Natasha...
by Jacqueline van der Blom | Jul 7, 2025 | Publication
Developing a standard dataset in the European registries for rare endocrine and bone conditions – a Melorheostosis dataset We are pleased to share the publication of a new EuRREB article: “Developing a standard dataset in the European registries for rare endocrine and...
by Jacqueline van der Blom | Jul 7, 2025 | General
We are pleased to share the publication of a new EuRREB article: “Developing a standard dataset in the European registries for rare endocrine and bone conditions – a Melorheostosis dataset”, now available in the Orphanet Journal of Rare Diseases on July 1, 2025....
