by Jacqueline van der Blom | Sep 25, 2026 | General
We are excited to highlight two new EuRREB studies focusing on Hypoparathyroidism, contributing to a better understanding of this rare endocrine disease and its long-term impact on patients. Natural History of Hypoparathyroidism Led by Dr. Femke van Haalen this study...
by Jacqueline van der Blom | Jul 30, 2026 | General
Join the growing EuRREB network and contribute to advancing knowledge and care for patients with rare endocrine and bone conditions. By becoJoin the growing EuRREB network and contribute to advancing knowledge and care for patients with rare endocrine and bone...
by Jacqueline van der Blom | Jun 15, 2026 | General
Want to stay updated with the latest EuRREB news? Read our June Newsletter. You can also subscribe to receive our updates twice a year – in January and...
by Jacqueline van der Blom | Apr 16, 2026 | General
We are excited to announce that the Women’s Reproductive Health module is now live on the Core Registry platform! The module was launched in April 2026 and is the work of the Pregnancy Working Group. Once a patient with any condition is entered into the Core Registry,...
by Jacqueline van der Blom | Apr 14, 2026 | General
We are excited to announce that the Hypoparathyroidism module is now live on the Core Registry platform! This condition-specific module activates automatically once a patient with Hypoparathyroidism is entered into the system – making data collection seamless and...
by Jacqueline van der Blom | Mar 19, 2026 | General
Do you know how to assign PROMs to your patients in the EuRREB Core Registry? Within the Core Registry, questionnaires are not sent automatically. As a clinician you need to assign them directly to your patients within the platform. To enable patients to complete...
