by Jacqueline van der Blom | Jan 8, 2026 | General
Want to stay updated with the latest EuRREB news? Read our January Newsletter. You can also subscribe to receive our updates twice a year – in January and...
by Jacqueline van der Blom | Dec 2, 2025 | General
We are pleased to share our latest publication: “Feasibility of transition research in pituitary disease using joint adult–paediatric endocrinology care”, available in the Endocrine Connections on December 2, 2025. Read the full publication here Why is this...
by Jacqueline van der Blom | Dec 1, 2025 | General
We are excited to announce that the Multiple Endocrine Neoplasia type 1 (MEN-1) module is now live on the Core Registry platform! This condition-specific module activates automatically once a patient with MEN1 is entered into the system – making data collection...
by Jacqueline van der Blom | Dec 1, 2025 | General
We are excited to announce that the Chronic Non-bacterial Osteitis (CNO) module is now live on the Core Registry platform! This condition-specific module activates automatically once a patient with CNO is entered into the system – making data collection seamless...
by Jacqueline van der Blom | Nov 28, 2025 | General
The European Commission has published the first-ever Continuous Monitoring Report for the European Reference Networks (ERNs), covering the 2023–2024 reporting period. This milestone report compiles data from more than 1,600 clinical units across 375...
by Jacqueline van der Blom | Nov 6, 2025 | General
The European Commission has opened a consultation on the draft Multiannual Financial Framework (MFF) – the EU’s long-term budget plan. In the current proposal, rare diseases are not explicitly mentioned, and the EU4Health programme no longer appears as a...
