Chronic Non-bacterial Osteitis (CNO)
The condition specific module was launched in December 2025 and is the work of the CNO Working Group.
Want to start using the module? Get access to the Core Registry and read the instructions (download, 1 MB) on how to use the module.
After entering the patient in the Core Registry, the CNO module appears automatically and is ready to use.
The full data dictionary can be downloaded here.
The module collects information on
- Clinical manifestation (at presentation and during the life-course)
- Patient’s history
- Imaging results
- Treatment modalities
This module refers to
Frequency of the data collection
The working group has decided on at least annual data collection, unless additional data entry (in case of important events) is needed. For this purpose a new outcome is created at every time point (the fields will be prefilled with the previously entered data).
Tools used in the module
The module is based on the recent consensus on CNO – Expert consensus recommendations for the diagnosis and treatment of chronic non-bacterial osteitis (CNO) in adults.
Please check out our study groups overview for current studies that include data from this module. If you are interested in working with data from this module, please fill out a Data Request Form.
If you have any questions or interest in joining the working group, please contact us on registries@lumc.nl.