Obtaining Registry Data
To obtain data from the Core Registry or e-REC, prospective investigators should have a look at the Data Access Policy (, 504 KB) and complete the Data Request Form and the Data Sharing Agreement (see below). The registries are open access, meaning that any stakeholder can request data if our data access policy is followed.
All the paperwork is accessible through the links below. However, before completing these forms, please contact the Registry Team which has extensive experience in supporting investigators in maximizing the research potential of the data in the Core Registry or e-REC. Our team can provide advice on the study process and design and liaise with registry users. Currently data provision and support does not incur a fee.
Once submitted the Data Request Form is sent to the Data Access Committee, for approval. Following submission, it takes about 6–8 weeks for the investigators to hear of the final outcome of their request.
- Data Request Form
- Data Sharing Agreement (, 66 KB)*
- Data Access Policy (, 504 KB)
- DAC Feedback Form
* This Data Sharing Agreement is for countries with EU Data Adequacy. If you are based in a country that does not have EU Data Adequacy, please use the non-EU Data Adequacy Form (, 90 KB).
When publishing data obtained from the registries, please follow the guidelines of our publication plan (, 183 KB). If you have any questions, please contact the registries team at email@example.com.