Congratulations to EuRRECa project leader Professor Faisal Ahmed from University of Glasgow for his appointment at the University of Leiden as Professor of Endocrine Registries. His inspiring Inaugural Lecture was held Monday 3 April.
The topic Strength in Numbers explained the importance of having high quality, patient-centred registries for rare diseases.
In addition to supporting several forms of clinical research, disease registries can deliver on improvements in the quality of clinical care.
Future challenges are minimizing the burden on clinicians or patients whilst sharing data and data linkage across borders.
Please read the full.