We are excited to share our latest publication: The Role of the European Reference Network for Rare Bone Diseases (ERN BOND) and European Registries for Rare Bone and Mineral Conditions (EuRR-Bone) in the Governance of the Management of Rare Bone and Mineral Diseases (, 2024)
In this comprehensive review, we delve into the pivotal role of ERN BOND and EuRR-Bone in streamlining the governance and management of rare bone and mineral diseases across Europe. This paper by the registries team and the ERN BOND coordination team highlights the importance of collaboration, data sharing, and standardized protocols in improving patient outcomes and advancing clinical research in this specialized field.
This publication is a testament to the power of cross-border cooperation in addressing the complexities in the care for and research in rare diseases.
For a detailed examination of the study and its findings, please visit the full publication.
For all of our publications please visit our publication page.
