We are excited to announce that the Langerhans Cell Histiocytosis (LCH) module is now live on the Core Registry platform!

This condition-specific module activates automatically once a patient with LCH is entered into the system – making data collection seamless and efficient.

What does the module include?

• Clinical features (disease activity, biopsy results, genetic testing, organ involvement)
• Medical treatment (past and current)
• Malignancies & comorbidities
• Patient-reported outcomes via EQ-5D

The full data dictionary is available for download.

We have also developed a dedicated module for non-Langerhans Cell Histiocytosis cases!

Explore the platform and learn more about the modules.

For more information regarding this module or our other modules, please contact registries@lumc.nl