The condition specific module was launched in January 2024 and is the work of the Pediatric Differentiated Thyroid Carcinoma Working Group.

Want to start using the module? Get access to the Core Registry and read the instructions (download, 2,7 MB) on how to use the module.

After entering the patient with Papillary or Folliculary thyroid cancer in the Core registry, the Pediatric Differentiated Thyroid Carcinoma module appears automatically and is ready to use.

The full data dictionary can be downloaded here. 

The module collects information on

• Anamnestic data
• Surgical treatment
• Histology and genetic findings
• Radioiodine therapy
• Post-treatment outcomes and recurrences

Please check out our study groups overview for current studies that include data from this module. If you are interested in working with data from this module, please fill out a Data Request Form.

If you have any questions or interest in joining the Working Group, please contact us at registries@lumc.nl