*The explanation below contains details about the creation and use of Patient Reported Outcome Measures (PROMs). If you have any questions on this explanation or want to know what your results mean, please contact your clinician.
PHPQoL Tool
The PHPQoL is a questionnaire that helps doctors understand how people with a disease called primary hyperparathyroidism feel. This disease can cause problems with calcium in the body. The questionnaire helps doctors see how too much calcium affects energy, mood, and how well someone can do everyday activities.
In 2013, a group of experts led by Prof. Susan M. Webb made this tool, and they checked it again in 2016 to make sure it works well. The PHPQoL asks how you have been feeling over the past 4 weeks. Doctors can use it again and again to see if treatments are helping and if the disease is getting better or worse.
The score on this test can go from 0 to 64:
- A 64 means no problems related to calcium levels.
- A 0 means the calcium problems are having a big impact on your life. So, a lower score means the condition is affecting you more.
This questionnaire is often used for people with Parathyroid cancer to see how they’re doing. Both patients and doctors can fill it out.
You can read more about this tool here (Development of a new tool for assessing health-related quality of life in patients with primary hyperparathyroidism – PubMed (nih.gov)) and here (Validation of PHPQoL, a Disease-Specific Quality-of-Life Questionnaire for Patients With Primary Hyperparathyroidism – PubMed (nih.gov))
If you don’t know what your results mean – please, contact your doctor for help.