On Monday April 3rd 2023, the first joint EuRRECa/EuRR-Bone symposium took place in Leiden, the Netherlands. With participants representing 11 countries we celebrated five years of the registries, took a look at our future plans, and exchanged knowledge.
We got to listen to different perspectives on the registries; from the ERNs, clinicians, researchers and patients. Registries activities have been discussed, such as our Condition Specific Modules, and we closed off the symposium with a nice lunch and poster exhibition.
The Registries Team is looking back at a great symposium, thanks to everyone joining us, either online or in-person!
If you were not able to join us, please watch the recordings: