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Recommendations for Improving the Quality of Rare Disease Registries

by sabine | Apr 1, 2018 | Publication

Recommendations for Improving the Quality of Rare Disease Registries Rare diseases (RD) patient registries are powerful instruments that help develop clinical research, facilitate the planning of appropriate clinical trials, improve patient care, and support...

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Leiden University Medical Center
Department of Endocrinology
Room C7-57, route 222
Albinusdreef 2
2333 ZA Leiden, the Netherlands

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