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Recommendations for Improving the Quality of Rare Disease Registries

by sabine | Aug 3, 2018 | Publication

Background Rare disease registries are essential tools for improving knowledge of rare conditions, supporting clinical research, facilitating clinical trials, and improving patient care. However, the rapid development of registries across Europe has resulted in...

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Leiden University Medical Center
Department of Endocrinology
Room C7-57, route 222
Albinusdreef 2
2333 ZA Leiden, the Netherlands

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