Skip to content
registries@lumc.nl
  • Our Registries
  • FAQ
  • Publications
EuRREB
  • About
    • About EuRREB
      • Mission and Vision
    • Steering Committee
    • Data Access Committee
    • Patient Advisory Board
    • Project Management Team
  • News
    • News
      • Newsletter
    • Events
      • Previous Events
    • Reports
    • Media & Downloads
  • Research
    • Publications
      • Publications Overview
      • Publication Guidelines
    • Core Registry
      • Condition Specific Modules
      • Studies Overview
    • e-REC
    • Data Dictionaries
    • Obtaining Registry Data
    • Ethics Approval
  • Patients
    • Our Registries
    • Patient Information
    • Patient Information Folders & Consent Forms
    • Tools and Outcomes
    • Contribute as a patient
  • Contribute
    • Why join EuRREB?
    • Join as new centre
    • Participating Centres
    • Stakeholders
  • Contact
    • Contact us
    • Drop-in sessions
  • Login
Select Page

The current landscape of European registries for rare endocrine conditions

by sabine | Jan 1, 2019 | Publication

Background Rare endocrine conditions affect a small proportion of the population and often require specialised multidisciplinary care. Due to the rarity of these conditions, available clinical knowledge is frequently limited and fragmented. Disease registries are...

Visiting address

Leiden University Medical Center
Department of Endocrinology
Room C7-57, route 222
Albinusdreef 2
2333 ZA Leiden, the Netherlands

Join our newsletter

Success!

Subscribe

Follow us

  • Follow
  • Follow

Privacy policy | Disclaimer | Copyright © 2025 EuRREB | All rights reserved | Website made by Sabine Geerlings

X