by sabine | Apr 1, 2020 | Publication
An overview of clinical activities in Endo-ERN: the need for alignment of future network criteria Objective Given that volumes of patients and interventions are important criteria to qualify as a reference centre (RC) for the European Reference Network on Rare...by sabine | Mar 1, 2020 | Publication
The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes Rare disease (RD) registries are important platforms that facilitate communication between health care professionals, patients and other...