by Jacqueline van der Blom | Oct 28, 2025 | General
We are pleased to share the publication of a new EuRREB article: “The Gender Incongruence module in the European Registries for Rare Endocrine & Bone Conditions (EuRREB): first results, current insights and future directions” now available in Endocrine...
by Jacqueline van der Blom | Oct 6, 2025 | Publication
We are pleased to share the publication of a new EuRREB article: “The Gender Incongruence module in the European Registries for Rare Endocrine & Bone Conditions (EuRREB): first results, current insights and future directions” now available in Endocrine...
by Tess de Rooij | Sep 26, 2025 | General
On Friday 12 September 2025, the EuRREB community came together for a very successful Registries Symposium at the Lipsius Building in Leiden, the Netherlands. With more than 130 participants (70+ in person and 60 via livestream) from 28 countries, the event fostered...
by Jacqueline van der Blom | Sep 18, 2025 | General
Congratulations to Professor Natasha Appelman-Dijkstra, Professor of Internal Medicine in Bone and Mineral Disorders, on her inspiring inaugural lecture held on Friday 12 September. In her inaugural lecture As Long as the Quality is Assured, Professor Natasha...
by Jacqueline van der Blom | Jul 7, 2025 | Publication
We are pleased to share the publication of a new EuRREB article: “Developing a standard dataset in the European registries for rare endocrine and bone conditions – a Melorheostosis dataset”, now available in the Orphanet Journal of Rare Diseases on July 1, 2025. Read...
