by Jacqueline van der Blom | Dec 21, 2023 | General
Find out everything there is to know about our e-REC and Core Registry on our: Frequently Asked Questions (FAQ) page. If you still have a question after reading the FAQ’s, please contact us at [mail-main]. In addition to our FAQ page for professionals we also...
by Jacqueline van der Blom | Sep 23, 2023 | General
Are you interested in putting data of your patients with rare endocrine and bone/mineral conditions into our registries, but need help to get started? We can show you how to enter the data and answer any questions you might have related to our registries. Drop-in for...
by Jacqueline van der Blom | Sep 23, 2023 | General
Study Groups are composed of experts from different disciplines including patient representatives. Each group brings together their expertise to accomplish its objectives. These might include developing research projects within the registries such as developing...by sabine | Jul 1, 2023 | Publication
Background Information on clinical outcomes of coronavirus disease 19 (COVID-19) infection in patients with adrenal disorders is scarce. Methods A collaboration between the European Society of Endocrinology (ESE) Rare Disease Committee and European Reference Network...by sabine | Jun 1, 2023 | Publication
Development of a pediatric differentiated thyroid carcinoma registry within the EuRRECa project: rationale and protocol Background Although differentiated thyroid carcinoma (DTC) is the most frequent endocrine pediatric cancer, it is rare in childhood and adolescence....