On Friday 12 September 2025, the EuRREB community came together for a very successful Registries Symposium at the Lipsius Building in Leiden, the Netherlands.

With more than 130 participants (70+ in person and 60 via livestream) from 28 countries, the event fostered knowledge exchange, discussions on challenges, and exploration of new opportunities – all with the shared goal of advancing research and improving patient care in rare endocrine and bone conditions.

The programme offered inspiring presentations, interactive discussions, and valuable networking opportunities. We were thrilled to see such enthusiastic engagement from researchers, clinicians, patient representatives, and other stakeholders.

A big thank you to all attendees, speakers, e-PAGs, and stakeholders who made this event such a success.

We look forward to seeing you at future EuRREB events!

Please note that the link to the livestream recording is currently not working, we are doing our best to solve this issues as soon as possible.