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*The explanation below contains details about the creation and use of Patient Reported Outcome Measures (PROMs). If you have any questions on this explanation or want to know what your results mean, please contact your clinician.

WHO-ICF Mobility Tool

The International Classification of Functioning, Disability and Health (ICF) is a system created by the World Health Organization (WHO) to help describe health and how people function in everyday life. It uses a standard way to talk about health, so everyone understands it the same way. The ICF looks at different parts of health, including how the body works, what activities a person can do, and the environment around them that might affect how they function.

There are three main parts in the ICF:

  1. The body – how it functions and its structure.
  2. Activities and participation – things people do, like moving around and taking part in daily life.
  3. Contextual factors – things in the environment that might help or make it harder to do things.

The section on activities and participation has 9 areas, like mobility (how well someone can move around). It includes 14 questions about things like sitting, walking, running, or even driving. For each question, you can say how easy or hard the activity is for you, from no difficulty to complete difficulty.

This tool is very useful for understanding how people with bone problems, like bone dysplasias, are doing. Both doctors and patients can fill it out.

You can read more about this tool here International Classification of Functioning, Disability and Health (ICF) (who.int)

If you don’t know what your results mean – please, contact your doctor for help.

    Visiting address

    Leiden University Medical Center
    Department of Endocrinology
    Room C7-57, route 222
    Albinusdreef 2
    2333 ZA Leiden, the Netherlands

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