Affiliate Registries
Signposting health care providers and patients to high quality detailed condition registries is one of the central aims of EuRREB. We achieve this aim by developing a list of affiliate registries:
          
        
         
| Registry | Description | Contact |
|---|---|---|
| Crescnet | Network for continuous and long-term monitoring of growth and weight development in children in Germany | info@crescnet.org |
| Eclip Registry | Global registry in the field of lipodystrophy. It aims to accumulate sufficient data for sound research in this area | help-eclip-registry@uniklinik-ulm.de |
| GloBE-Reg | Global registry for novel therapies in rare bone & endocrine conditions | info@globe-reg.net |
| SDM Registries | International registries for rare conditions affecting Sex Development & Maturation | sdmregistries.org/contact/ |
Registries seeking affiliate status should complete the Affiliate Registry Form. Please note a separate form should be completed for each registry.