Data Dictionaries

Data Dictionaries

Please find here the data dictionaries for e-REC, Core Registry and the Condition Specific Modules. If you are missing a condition or have a question regarding the dictionaries, please contact the Registries Team at registries@lumc.nl.

e-REC

Core Registry

In the e-REC and Core Registry data dictionaries above, we use different disease classifications to code the conditions we cover. With the ORPHA code Data Viewer healthcare professionals can efficiently search and navigate disease classifications. This user-friendly tool allows you to search by various codes and terms, making it easier to access information about rare conditions.

Condition Specific Modules