Chronic Non-bacterial Osteitis
This study focuses on the rare condition of “chronic nonbacterial osteitis” (CNO) in adults. Little is known about the cause of CNO, its disease course, and optimal treatments. To gain a better understanding of adult CNO, there is a need for an international patient registry in which data is centrally collected. By the launch of a condition-specific module (CSM), we aim to collect clinical, laboratory, radiological and treatment
information of adult CNO patients in different countries. Herewith, larger studies can be conducted that address key research areas such as clinical presentation, diagnostics, prognosis, and optimal treatments. Ultimately, the CSM could ultimately improve patient care and outcomes.
Objective
Developing an international registry for Chronic Non-bacterial Osteitis (CNO) in adults.
Members of this Working Group
| Name | Expertise / Role | Organisation |
|---|---|---|
| Lead: Liesbeth Winter | endocrinologist | Leiden University Medical Center, the Netherlands |
| Barbara Hauser | rheumatologist | NHS Lothian, University of Edinburgh, Western General Hospital, Schotland |
| Hermann Girschick | rheumatologist | Klinik für Kinder- und Jugendmedizin, Germany |
| Mariya Cherenko | endocrinologist, EuRREB data manager | Leiden University Medical Center, the Netherlands |
| Natasha Appelman-Dijkstra | endocrinologist, EuRREB coordinator | Leiden University Medical Center, the Netherlands |
| Olaf Dekkers | endocrinologist, methodological consultant | Leiden University Medical Center, the Netherlands |
| Philip Helliwell | rheumatologist | Leeds Institute of Rheumatic and Musculoskeletal Medicine, UK |
| Simone Appenzeller | rheumatologist | University of Campinas (UNICAMP), Brasil |
| Tiara Gill | rheumatologist | Royal National Orthopaedic Hospital, UK |