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Natural History of FD/MAS
[insert summary and/or plain language abstract of study, questions 48/49 of Data Request]
Objective
[insert objective/aim of the study in 1 sentence, based on questions 48/49 of Data Request]
For publications from this and other study groups, see our publication page.
Members of this Study Group
| Name(s) | Expertise / Role | Organisation |
|---|---|---|
| Lead: Natasha Appelman-Dijkstra | internist-endocrinologist, EuRR-Bone coordinator | Leiden University Medical Center, the Netherlands |
| Roland Chapurlat | rheumatologist | INSERM, France |
| Gaby Doxiadis | patient representative | Dutch FD/MAS foundation, the Netherlands |
| Kassim Javaid | rheumatologist | NDORMS, University of Oxford, UK |
| Diana Ovejero Crespo | endocrinologist | Hospital del Mar, Barcelona, Spain |
| Daniele Tessaris | pediatric endocrinologist | Regina Margherita Children’s Hospital, Italy |
| Nerea Arrieta Urriategi Magdalena Caballero Campos |
patient representatives | Fibrous Dysplasia, Spain |
| Oana Bulaicon | endocrinologist | Leiden University Medical Center, the Netherlands |
| Lothar Seefried | orthopedic surgeon | University Hospital at the Julius-Maximilians University, Germany |
For more information regarding the study or if you are interested to contribute to this study, please contact registries@lumc.nl.