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The EuRREB Core Endocrine Registry and its potential for studying transition of care in Endo-ERN centres 

by Jacqueline van der Blom | Sep 24, 2026 | Publication

Background This study describes the first six years of data collection within the EuRREB Core Endocrine Registry, a multinational platform developed to collect harmonised clinical data on rare endocrine conditions across Europe. The registry supports longitudinal data...
June Newsletter

June Newsletter

by Jacqueline van der Blom | Jun 15, 2026 | General

Want to stay updated with the latest EuRREB news? Read our June Newsletter. You can also subscribe to receive our updates twice a year – in January and...
Assigning PROMs to patients (for clinicians only)

Assigning PROMs to patients (for clinicians only)

by Jacqueline van der Blom | Mar 19, 2026 | General

Do you know how to assign PROMs to your patients in the EuRREB Core Registry? Within the Core Registry, questionnaires are not sent automatically. As a clinician you need to assign them directly to your patients within the platform. To enable patients to complete...
June Newsletter

January Newsletter

by Jacqueline van der Blom | Jan 8, 2026 | General

Want to stay updated with the latest EuRREB news? Read our January Newsletter. You can also subscribe to receive our updates twice a year – in January and...

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